Keynote Speakers Include:


The PDF brochure for the 6th Annual Rare Disease Market Access & Commercialization Summit is now available. Download it now

As part of the Patient Congress





Including Chief Executives & Thought Leaders


Keynotes, Panel Discussions, Case Studies, & Interactive Breakouts


Engaging content & networking

Agenda Themes Include:

Orphan Drug Commercialization

Addressing Patient and Market Access Challenges

Value, Pricing, and Reimbursement Strategies

Rare Disease Patient Advocacy Collaborations

Value Demonstration

Patient Support and Services


The Summit always does a great job of covering the key issues Patients, Pharma and Advocacy are facing.

–Patient Advocate Foundation

Very interactive, high-level discussions and relevant agenda topics made this congress valuable time spent

–Director, Advocacy and Alliance Development, GSK

The summit did a great job of covering a broad spectrum of issues and examples that Pharma and Advocacy are facing. There could be benefit from tightening the topics to the top issues of interest across Pharma and advocacy to involve patients

Excellent topics- great meeting! This is my first meeting on Patient Advocacy/ Patient Engagement and it was absolutely inspiring and educational. It was important to learn about the full breadth, including policies and guidance of patient engagement. I also loved the size of the meeting- facilitated easy communication and networking.

New for 2019:

Chief Patient, Medical, and Commercial Officer Perspectives

Explore Key Insights from C-suite leaders from Pfizer, CSL Behring, Novo Nordisk, Leo Pharma and More To Design Your Patient Centered Rare Disease Commercialization Strategy.

CMS Policy Update

Barbara Connors, Chief Medical Officer, CMS Gives An Update To Recent Medicare Part D Changes And Future CMS Priorities For Value-Based Care.

Pricing, Market Access, and Commercialization Insights

Gain Insight into value-based pricing, Market Access, and reimbursement for orphan drugs from C-suite and VP leaders from Sigilon Therapeutics, Eloxx Pharmaceuticals, Pfizer, and more!

Patient-Choice Awards Ceremony and Patient Stories!

Hear First-Hand Patient Stories From Patient Leaders in the Rare Disease Community. Your Pass Includes Access To The Patient-Choice Awards, Where 30 Patient Leaders Recognize Innovative Pharma Collaborations And Programs That Demonstrate Measurably Better And More Transparent Health Outcomes and Promote a Better Patient Experience.

Access to Two Additional Summits!

Your Ticket Includes Access To The Entire Patient Congress. Tailor Your Onsite Experience by Exploring The Co-Located Patient Engagement and Adherence and Rare Disease Market Access and Commercialization Summits!

The Networking Party

Join 200+ leaders for Music, Fun Pictures, and Drinks to network with leading pharma executives and multi-stakeholders!

We are Patients Included Accredited

Are you a Patient and Interested in attending?

Are you an Industry leader with Breakthrough Solutions?

Awards Include

Excellence in Patient Engagement Award

Most influential Patient Advocacy Collaboration

Most Influential Rare Disease Initiative Awardd

Patient Centricity Trendsetter Award









Get Involved:

Participating Organizations

Gold Partner

Cocktail Reception Host

Executive Partners

Supporting Partners


Marketing Partners