2019 Keynote Speakers Include:


The PDF brochure for the 7th Annual Rare Disease Market Access & Commercialization Summit is in production. Request it now and our Customer Service team will contact you once the brochure becomes available.

2020 Agenda Themes Include:

Orphan Drug Commercialization

Addressing Patient and Market Access Challenges

Value, Pricing, and Reimbursement Strategies

Rare Disease Patient Advocacy Collaborations

Value Demonstration

Patient Support and Services


The Summit always does a great job of covering the key issues Patients, Pharma and Advocacy are facing.

–Patient Advocate Foundation

Very interactive, high-level discussions and relevant agenda topics made this congress valuable time spent

–Director, Advocacy and Alliance Development, GSK

The summit did a great job of covering a broad spectrum of issues and examples that Pharma and Advocacy are facing. There could be benefit from tightening the topics to the top issues of interest across Pharma and advocacy to involve patients

Excellent topics- great meeting! This is my first meeting on Patient Advocacy/ Patient Engagement and it was absolutely inspiring and educational. It was important to learn about the full breadth, including policies and guidance of patient engagement. I also loved the size of the meeting- facilitated easy communication and networking.

The 2019 On-Site Experience

Get Involved:

Call for Papers

Submit Abstract for Presentations

7th Annual Rare Disease Market Access & Commercialization Summit is now accepting abstract submissions for 2020!

Deadline is January 31, 2020.


Participating Organizations

Benefit from one-on-one meetings, corporate branding and relationship building by participating as an active corporate supporter and sponsor. World Congress offers various levels of support and sponsorship opportunities. To learn more contact:

Hunter Gates
Business Development Manager
Phone: 781-939-2494