8:15 am
  • Shift internal culture to move from being product-centered to patient-centered
  • Analyze the key components to patient-focused leadership
  • Explore ways to use a patient engagement strategy to optimize the patient experience and improve health outcomes
  • Define patient engagement and what it means for your organization
  • Understand how to make the case for patient engagement to gain executive buy-in

Moderator:

Michele Rhee
Michele Rhee, MBA, MPH
Vice President, Patient Affairs, Advocacy
X4 PHARMACEUTICALS

Panelists:

Camilla Lauritzen
Camilla Lauritzen
Chief Patient Officer
Leo Pharma

9:00 am
  • Explore best practices to ensure patients have access to therapies through assistance programs, copay cards, and coupons
  • Examine the impact of benefit verification, prior authorization, and copay assistance to ensure an effective patient access strategy
  • Ensure access to necessary medications through cross stakeholder collaboration
Timothy Paine
Timothy Paine
Vice President, Pharma Strategy and Relations
Fairview Specialty Pharmacy

10:15 am
  • Gain insight to update reimbursement strategies, ensure better patient access, and optimize patient outcomes
  • Enhance patient adherence efforts and leverage adherence metrics for value-based arrangements
  • Align and achieve incentives that improve care coordination and drive a better patient experience
Harvey Littman
Harvey Littman
Senior Vice President, CFO and Treasurer
Capital Blue Cross

11:00 am
  • Gain insight into the real-life struggles of patients and caregivers
  • Explore best practices when implementing patient support services
  • Understand how to build interventions that improve adherence, foster advocacy collaborations, and advance market access

Moderator:

Dina Marie Inverso
Dina Marie Inverso
Director, US Commercial Operations, Reimbursement, Patient Engagement
CSL Behring

Panelists:

Terry Jo V. Bichell, PhD, MPH
Rare Action Network
Ambassador for Tennessee,
NORD; Angelman Syndrome
Parent Advocate

Emily Lemiska
Emily Lemiska
Director, Communications
U.S. Pain Foundation

Marla Jan Wexler
Marla Jan Wexler, BSN, RN, CPN
Nurse, Patient,
Advocate, Survivor

11:45 am
         
1:30 pm
  • Learn how to build partnerships with patient advocates, create bilateral relationships with patient advocacy organizations, and empower patient representation within your organization
  • Build mutually beneficial partnerships to educate patients and caregivers on disease and health awareness
  • Examine ways to define goals for advocacy collaboration in public policy and engagement initiatives
  • Incorporate patient group values into partnerships and collaboration strategies

Moderator:

Scott Williams
Scott Williams
Vice President, Head of Global Patient Advocacy and Strategic Partnerships
EMD Serono

Panelists:

Julie Breneiser
Julie Breneiser
Executive Director
Gorlin Syndrome Alliance

Joslyn Crowe
Joslyn Crowe, MSW, MA
Executive Director
National Niemann-Pick Disease Foundation, Inc.

Sarah Krug
Sarah Krug
Chief Executive Officer
Cancer 101

2:15 pm
  • Explore the current trends and future market shifts impacting patient advocacy and policy initiatives
  • Incorporate the patient voice throughout the product lifecycle to define a patient-centric patient advocacy strategy
  • Define the role of advocacy in translating the patient experience to functions across the company
  • Align advocacy priorities with internal corporate strategy, marketing, public relations, and clinical research
Catherine Jackson
Catherine Jackson, RN, MPH
Director of Advocacy Relations, Government Affairs, Policy and Advocacy
Mallinckrodt Pharmaceuticals

Jordanna Mora
Jordanna Mora
Associate Director, Patient Advocacy and Engagement
Alnylam Pharma

3:00 pm
  • Discover FDA initiatives to drive patient engagement and patient-focused drug development
  • Discuss current FDA programs and future initiatives around policy efforts related to patient engagement
  • Gain clarity on how to effectively engage patient groups in co-creating solutions
  • Use patient engagement to enhance product development
Andrea Furia-Helms
Andrea Furia-Helms
Director, Patient Affairs
FDA

4:15 pm
  • Explore best practices to encourage patient enrollment in clinical trials
  • Drive patient engagement through patient-focused drug development initiatives
  • Explore the use of expanded access programs in ensuring patients have access to investigational medicines
Trisha Devlin
Trisha Devlin
Senior Director, Patient Value
Dermira

Jessica Riviere
Jessica Riviere
Senior Director, Patient Advocacy
Biogen

5:00 pm
  • Understand ethical ways to build trust with rare disease patient communities
  • Optimize interactions between patient advocacy groups and industry
  • Understand ethical ways to build trust with rare disease patient communities
  • Identify barriers to care in the rare disease community and strategies to facilitate access
  • Optimize interactions between patient advocacy groups and industry
Jill Pollander
Jill Pollander
Director, Patient Services
National Organization For Rare Disorders (NORD)