Kristina Broadbelt has more than 20 years’ experience in healthcare communications, public affairs and stakeholder relations across pharmaceutical, biotechnology, medical device and medical service companies. Starting her career in consulting, she transitioned to industry a decade ago with a focus on “patient-partnered” care. Most recently, Broadbelt built the global advocacy function for ViroPharma Incorporated, a rare disease biotech acquired by Shire in 2014. Currently, she is the Director of Global Patient Advocacy for Raptor Pharmaceuticals, an emerging global biopharmaceutical company focused on developing and commercializing life-altering therapeutics that treat rare, debilitating and often fatal diseases.
Andrea Furia Helms
Patient Representative Program FDA
Andrea Furia-Helms is currently on detail as the Acting Director of the Patient Affairs Staff in the Office
of Medial Products and Tobacco, Office of the Commissioner. She is working with the centers/offices to
support the FDA’s ongoing patient engagement efforts and is coordinating cross-cutting patient
engagement activities to ensure patients, caregivers, and advocates have opportunities to share their
perspectives in the FDA regulatory meetings. Ms. Furia-Helms spent the past ten years in the FDA’s
Office of Health and Constituent Affairs where she directed the FDA Patient Representative Program and
coordinated patient engagement activities.
Prior to FDA, Ms. Furia-Helms was Director of the Back to Sleep (now Safe to Sleep) campaign, a public-
private partnership to educate communities on Sudden Infant Death Syndrome (SIDS), at the National
Institutes of Health. She developed SIDS outreach initiatives for African American, American Indian and
Ms. Furia-Helms has a B.A. in psychology from Framingham State University, a B.S. degree in
community health education from University of Maryland, and a Master of Public Health degree from
The George Washington University.
Pujita Vaidya, MPH
Director (Acting), Decision Support and Analysis Team (DSAT) Office of Program and Strategic Analysis (OPSA)/ Office of Strategic Programs (OSP) FDA
Luther Clark, MD, FACC, FACP
Global Director, Scientific Medical and Patient Perspective Merck
Eydith Comenencia-Ortiz, PhD
Lead, Alliance and Advocacy Relations Genentech
Senior Principal AGAPE Strategic Solutions, LLC.
Dr. Covington is currently a Senior Director and Global Head of Field Medical Strategy for Medical, Diabetes and Cardiovascular Disease Business Unit at Sanofi. She specializes in building and deploying stakeholder and patient engagement models with supporting measurement and training infrastructure to improve the health outcome strategies. Her goal is to apply these insights in strategic and innovative ways to address complex issues within healthcare systems, organizations and communities. Much of her work focuses on population-based health disparities in outcomes, operations management and cultural competency models.
Prior to joining Sanofi, Melva led both Global and US-based teams in Health Outcomes and Pharmacoeconomics across a number of therapeutic areas at Lilly and Roche Labs. She is passionate about assessing integrated data and perceptions contextually and then applying that knowledge for targeted health solutions across diverse patient populations.
She has an A.B. in Politics/Economics from The Catholic University of America, Masters of Public Health in Maternal and Child Health and Ph.D. from the University of North Carolina at Chapel Hill and MBA from the Johnson School at Cornell University. Melva has authored numerous publications, is an avid public speaker and serves as a mentor to youth throughout the United States.
Judy A. Doyle
Judy A. Doyle
Community Engagement Specialist Abeona Therapeutics, Inc.
As the Community Engagement Specialist, Judy works with Abeona’s focused patient groups to drive forward overall awareness and progress in rare disease. In her previous position, she advocated for Patient and Family Centered Care by engaging pediatric patients and their caregivers in policy, program and procedural development. Having built the Parent Advisor program at Akron Children’s Hospital. She has developed numerous programs including forming and leading patient/caregiver advisory boards within her institution and nationally within the Solutions for Patient Safety. Her passion for rare disease advocacy, patient/caregiver engagement stem from her first-hand experience as the parent of a child with a rare genetic disorder. This experience gives her a unique lens and the ability to bring the parent perspective to all aspects of her work. She served as a board member for Cardio-Facio-Cutaneous Syndrome International for 14 years helping to establishing parent support resources and fundraising guidelines. She has a marketing degree from the University of Akron and lives in Medina, Ohio.
Jayne C. Gershkowitz
Jayne C. Gershkowitz
Chief Patient Advocate Amicus Therapuetics
Todd Hobbs, MD
Chief Medical Officer NovoNordisk
Todd Hobbs, MD, is vice president and chief medical officer for Novo Nordisk in North America, where he leads the organization’s focus on the implications of diabetes for the patient, healthcare system and healthcare professionals.
Dr. Hobbs provides overall medical guidance to Novo Nordisk’s diabetes- and obesity-related projects. He provides input into the clinical development and life-cycle management strategies for diabetes and obesity, as well as medical input into the R&D pipeline. He is involved with the optimization of relationships with top key opinion leaders and medical societies, and provides guidance to and participates in consultant advisory boards and key patient and professional associations and top thought leaders in diabetes.
Dr. Hobbs began his career at Novo Nordisk in 2004 as a field medical scientific director, then moving to the position of senior medical director, diabetes, in 2010. He led the Medical Affairs activities for all of Novo Nordisk’s current insulin products and devices, as well as supporting future insulin products through strategic and tactical activities.
In 2016, he started a 3 year term serving on the board for the American Medical Group Foundation (AMGF), the research foundation arm of the American Medical Group Association (AMGA).
Prior to working at Novo Nordisk, Dr. Hobbs had established a clinical practice based in Louisville, Kentucky, focusing on the intensive management of patients with diabetes of all ages, and served as chairman of the Medicine Department for a large Regional Medical Center in Kentucky. During this 10-year clinical career, he cared for more than 2,500 adults and children with diabetes, including outpatient and inpatient care, as well as intensive care.
Dr. Hobbs’ has a unique perspective on and personal dedication to the treatment of diabetes: his own experience with the disease began more than 25 years ago when he was diagnosed with type 1 diabetes. His passion for defeating the disease intensified even more with the diagnosis of one of his sons with the same condition at the age of five.
Head of Corporate Compliance and Legal Counsel Spark Therapeutics
Chief Medical Officer Lexicon Pharmaceuticals
Senior Vice President, Business Operations and Advocacy Horizon Pharma
Head, Global Patient Advocacy Spark Therapeutics
Jamie Ring is the Head of Patient Advocacy at Spark Therapeutics, a leader in the field of gene therapy. In her role, Jamie is responsible for patient advocacy activities related to Spark’s disease areas of interest. Prior to joining Spark, Jamie spent 10 years at Genzyme, where she most recently served as the Vice President of Patient Advocacy and Humanitarian Programs – Rare Diseases. In that role, Jamie provided strategic oversight of all advocacy programming and managed external partnerships related to Genzyme’s global humanitarian programs which provide free therapy to hundreds of patients around the globe. Prior to Genzyme, Jamie worked at Biogen supporting patient programs for both the Multiple Sclerosis and Non-Hodgkin’s Lymphoma disease communities. Additionally, Jamie worked at the ALS Therapy Development Institute as the Associate Director of Programs, responsible for ALS disease awareness initiatives and fundraising campaigns. In 2013, Jamie was voted by PharmaVoice magazine as one of the 100 most inspiring leaders in the pharmaceutical industry.
Jamie holds a B.A. in Sociology from Union College, Schenectady, NY and a M.P.H. in Social & Behavioral Sciences from Boston University.
Roslyn F. Schneider
Roslyn F. Schneider, MD, MSc, FACP, FCCP
Global Patient Affairs Lead Pfizer
Vice President Patient Experience UCB
Douglas Stover joined UCB in 2016 to lead the Patient Experience and Value Mission for the Global Neurology Patient Value Unit.
Prior to joining UCB, Douglas spent 10 years with Gallup, a research based consultancy, where he served as a strategic advisor to clients building customer focused cultures. During his time a Gallup, he was also responsible for the overall success of the joint venture between Gallup and Healthways, Inc., whose mission was to redefine how individuals, organizations, communities and countries measure and manage well-being. Previous experience includes senior positions at The Advisory Board, OgilvyOne and ICG Commerce.
Douglas received his Bachelors of Science from the Pennsylvania State University and Masters of Business Administration from Georgetown University.
Vice President Global Patient Advocacy and strategic partnerships EMD Serono
Scott Williams is currently Vice President, Head of Global Patient Advocacy and Strategic Partnerships at EMD Serono.
Scott is actively sought out as a speaker and resource on health issues by the media, policymakers, public health professionals, physician key thought leaders, and patient advocacy leaders. He has been featured as an expert in the New York Times, CNN, MSNBC, Washington Post, Baltimore Times, Medicare Reimbursement Weekly, Chicago Tribune, National Public Radio, St. Petersburg Times, Inside CMS, Dallas Morning News, Seattle Post-Intelligencer, among others.
Scott has been a peer reviewer and contributing author to the American Journal of Men’s Health, a SAGE Publication. He also founded the Men’s Health Caucus within the American Public Health Association. Scott is the former President of the Sigma Phi Epsilon Alumni Volunteer Corporation, and former member of the Moravian College Alumni Association Board.
Prior to joining EMD Serono, Scott was Managing Director, Strategic Partnerships at the American Cancer Society Cancer Action Network (ACS CAN), Senior Vice President at Men’s Health Network (MHN), Public Relations Manager for sanofi pasteur in Swiftwater, PA, and Senior Analyst of Strategic Services at PharmaStrat, Inc. based in Flemington, NJ. Scott received his BA in Political Science with Honors and a minor in Business Management from Moravian College in Bethlehem, PA. Scott also has a Master’s in Public Administration (MPA) from American University in Washington, DC.
Executive Director Chronic Disease Coalition
Founder and Board President Keep Swimming Foundation
On April 24, 1989, Bill was born with Hypoplastic Left Ventricle Syndrome, a congenital birth defect. That night, he was flown by helicopter to a hospital in Chicago, Illinois, where his family was told the only cure would be an infant heart transplant. It was also explained that Bill had 21 days left to live, for if the doctors waited any longer than twenty-one days, the rest of his organs would begin to fail.
In the final hours of Bill’s twenty-first day, the phone rang with a donor offer from Ontario, Canada. That night, on May 16, 1989, Bill became the fourth infant heart transplant ever performed in the Midwest and the eighth in the nation.
Years passed, and he never suffered any complications. That was until June 8, 2009, when at the age of 20, Bill was rushed to the hospital where a team of doctors informed him that he was in both end-stage heart and kidney failure.
Bill later spent 70 days in the Intensive Care Unit of a Chicago hospital awaiting a double transplant and a second chance at life. Fortunately, and thanks to the generosity and selflessness of Bill’s second donor, his life was saved again on October 21, 2009.
Since returning home from the hospital in 2009, Bill has become an avid spokesperson for organ donation, as well as a motivational speaker. Bill also provides hope for his readers via direct email communication.
Bill’s personal experience and ability to overcome obstacles has enabled him to share remarks before the American Society for Histocompatibility and Immunogenetics, The American Heart Association, and many other well-respected organizations.
Elizabeth Franklin, LGSW, ACSW
Executive Director, Cancer Policy Institute Cancer Support Community
Elizabeth Franklin, LGSW, ACSW, is Executive Director of the Cancer Policy Institute (CPI) at the Cancer Support Community (CSC) where she is responsible for all aspects of the Institute including day-to-day operations, strategic and policy direction, fundraising, and management. Previously, Elizabeth was Senior Director of Policy and Advocacy at CSC where she developed and implemented CSC’s regulatory and legislative agenda, secured relationships with policymakers and stakeholders across multiple sectors, and engaged national partners to identify areas of common work and consensus to collectively advocate for positive change for people affected by cancer.
Elizabeth was formerly Director of Policy and Engagement at the George Washington University Cancer Institute where she worked at both the macro level, developing and implementing the Institute’s policy agenda, and at the micro level, working with the patient-centered care team to ensure that all patients had access to high-quality, timely cancer care. Previously, Elizabeth was Senior Director of Policy and Advocacy with the Prevent Cancer Foundation as well as Special Assistant to the Chief Executive Officer at the headquarters of the National Association of Social Workers.
Currently a doctoral student at the University of Maryland School of Social Work, Elizabeth is focusing her studies on the ways in which cancer patients and survivors define value in the cancer care system and how those definitions can be incorporated into public policy and practice initiatives. Elizabeth obtained her Masters degree in social work from the University of Illinois at Chicago and her Bachelors degree in social work from the University of Kentucky. She is a Licensed Graduate Social Worker in the District of Columbia and a member of the Academy of Certified Social Workers
President and Founder International Pain Foundation
Barby Ingle lives with reflex sympathetic dystrophy (RSD), migralepsy, TMJD, endometriosis and other pain disorders. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics. She began mentoring other patients in 2006. Barby also serves on the board of advisers for CureClick, is a member of SPPAN, and a founding member of CPATF. Barby has been featured in the media over 850 times since 2009. More information about Barby can be found at her website www.barbyingle.com. Her blog is used as a platform to help her become an ePatient advocate, and she now travels the country attending healthcare conferences, speaking publicly, sharing her story, educating and advocating for patients across the globe. She has received 19 accommodations over the years for her advocacy work including; 2011 iPain Hero of Hope Award, 2012 WEGO Health Ms. Congeniality, 2012 NAF You Are Our Hero Award, 2013 International Inspirational Luminary, 2015 IDA Impact Award, and 2016 WEGO Health Lifetime Achievement. In 2017, Barby was named a Health Information Technology Top 100 Influencer by HealthScene and Top 20 Health Influencer by Insider Monkey Magazine.
Executive Director Alliance for Patient Access
Sue Peschin, M.H.S.
President and CEO Alliance for Aging Research
Susan Peschin, MHS, is president and CEO at the Alliance for Aging Research. The Alliance for Aging Research is dedicated to accelerating the pace of scientific discoveries and their application to vastly improve the universal human experience of aging and health. For more than 30 years, the Alliance has guided efforts to substantially increase funding and focus for aging at the NIH, FDA, AHRQ, and CDC; built influential coalitions to guide groundbreaking regulatory improvements for age-related diseases; and created award-winning, high-impact educational materials to improve the health and well-being of older adults and their family caregivers.
Since 2012, Ms. Peschin has been a driving force in the growth and success of the organization. Under her leadership, the Alliance has remained strong in these priorities and continued to build on its reputation as a forward-thinking public policy and health education organization. As president and CEO, she leads the strategic development and implementation of Alliance initiatives, as well as manages Board governance and organizational operations. As a thought leader on many aging-related issues, she has led the Alliance in efforts to: boost older adult immunization rates; increase NIH Alzheimer’s disease and aging research funding; raise awareness of geriatric cardiac issues; develop a senior patient and family caregiver network through a PCORI engagement grant; and co-organize a first-ever NIH geroscience summit. She participates in major industry and policy symposiums around the country each year, and has published opinion pieces in news outlets nationwide.
Ms. Peschin currently serves on the Board of Heart Valve Voice U.S. and the National Council on Patient Information and Education; on the World Economic Forum’s Council on Human Enhancement; on the National Advisory Council for the National Institute on Aging at the NIH; on the Steering Committee for the Coalition for Imaging & Bioengineering Research; and as a member of the Lifespan Domain Task Force for the Clinical & Translational Science Award program, funded by NCATS at the NIH.
Ms. Peschin earned a B.A. in Sociology from Brandeis University, and a M.H.S. degree in Health Policy from the Johns Hopkins University Bloomberg School of Public Health.
President and CEO National Coalition on HealthCare
John Rother is President and CEO of the National Coalition on Health Care, America’s oldest and most diverse group working to achieve comprehensive health system change. The Coalition’s membership of more than 80 participating organizations includes medical societies, businesses, unions, health care providers, faith-based associations, pension and health funds, insurers, and groups representing consumers, patients, women, minorities, and persons with disabilities.
Prior to joining the Coalition in 2011, Mr. Rother served as the longtime Executive Vice President for Policy, Strategy, and International Affairs at AARP. There he led the development of AARP’s policy positions and advocacy strategies. Under his leadership, AARP engaged in robust public policy research and analysis, public education, and advocacy on health and retirement issues at the federal, state and international levels. Mr. Rother wrote numerous articles and was a frequent speaker on health, retirement security, the federal budget, and the boomer generation.
From 1981 to 1984, Mr. Rother was Staff Director and Chief Counsel for the U.S. Senate Special Committee on Aging under the direction of Chairman John Heinz (R-PA). From 1977 to 1981 he served as Special Counsel for Labor and Health to U.S. Senator Jacob Javits (R-NY).
Mr. Rother is a graduate of Oberlin College and the University of Pennsylvania Law School. He is a member of the DC Bar, the National Academy of Social Insurance, and the Gerontological Society of America.
In 2010 Mr. Rother received the Robert Ball Award for Outstanding Achievements in Social Insurance from the National Academy of Social Insurance for “lifetime advocacy to strengthen Social Security and Medicare.”
Executive Vice President
Advocacy & Health Quality American Heart Association
As Executive Vice President of Advocacy and Health Quality at the national center of the American Heart Association, Mark Schoeberl is responsible for the overall strategic direction of the Heart Association’s public policy efforts including policy research and development of organizational position statement, legislative and regulatory affairs at the state and federal level, and community-based advocacy initiatives including Voices for Health Kids, a Robert Wood Johnson Foundation funding initiative to address childhood obesity. Mr. Schoeberl also leads the Association’s health care systems and clinical quality improvement initiatives, including the AHA’s award-winning flagship Get with the Guidelines program to improve in-hospital cardiovascular and stroke care, Mission:Lifeline targeting pre-hospital systems of care, and collaborative efforts with the Joint Commission and American College of Cardiology to provide disease-based certification programs to identify centers of excellent in cardiovascular and stroke care.
Mark is the member of the Public Affairs Council board, immediate past chair of the Campaign to End Obesity (Washington, DC), past chair of the National Forum to Prevent Heart Disease and Stroke (Atlanta), and served as a consumer representative for the National Association of Insurance Commissioners.
Prior to joining the AHA in 2002, Schoeberl was deputy director and chief of staff at the Iowa Department of Public Health.
Schoeberl, an Iowa native who now resides in Plano, Texas, received a Bachelor’s of Arts in Political Science from Simpson College (Indianola, Iowa) and a Master’s of Public Administration from Iowa State University.
Karlin Schroeder, MA
Director, Community Engagement Parkinson’s Foundation
Karlin Schroeder, M.A. is the Director of Community Engagement at the Parkinson’s Foundation, where she leads the Parkinson’s Advocates in Research program (PAIR). Through this program, Karlin runs the Parkinson’s Foundation Learning Institute, an intensive multi-day course that has trained over 300 people with Parkinson’s and their care partners in the research process and provides tools and resources for successful collaboration with research teams. Karlin creates and directs projects to incorporate patient expertise into research with industry, academic centers and government. Her work includes improving diversity in patient advocacy in Parkinson’s disease and defining metrics in patient engagement in research. She is a member of Patient Focused Medicines Development and the Clinical Trials Transformation Initiative Steering Committee.
Advisor Health Advocacy
& Stakeholder Strategies
National Board Member CANCER SUPPORT COMMUNITY
Tom Wallace is a national board member of the Cancer Support Community as well as advocate and thought leader for alliance building functions and strategies in health care. He previously led Eli Lilly and Company’s global advocacy function. Tom has created industry leading efforts to build relationships, integrate advocate insights to improve clinical drug development, and find common ground with health care stakeholders on public policy and plans to solve commercial challenges and opportunities. He believes the foundation for partnering is grounded on the needs and priorities of patients and their support network. Tom was also an early contributor to several initiatives related to transparency in health care and global health programs.
Other experiences include government service, volunteerism, and chairmanship of the PhRMA Alliance Section from 2006-08 when the Part D drug benefit was created. Tom was elected to the National Health Council board, serving a full term and on the executive committee; and, selected to serve on the American Osteopathic Foundation Board in 2017. He enjoys amateur gardening and triathlons.
C. Grace Whiting
C. Grace Whiting, J.D.
President and CEO National Alliance for Caregiving
C. Grace Whiting, J.D., is the President and Chief Executive Officer at the Alliance where she continues her tenure after serving in various roles including Chief Operating Officer and the Director of Strategic Partnerships. In addition to her work at the Alliance, Ms. Whiting has served as the Advocacy and Communications Director at Leaders Engaged on Alzheimer’s Disease (LEAD Coalition) and as the Director of Strategic Initiatives & Communications and as the Special Assistant to the Executive Director at the Alliance for Home Health Quality and Innovation in Washington, D.C. She is currently a licensed attorney with the District of Columbia Bar and a member of the American Society on Aging and the American Society of Association Executives.
An internationally renowned thoracic surgeon, researcher, author and academician, Larry R. Kaiser, MD, is the leading health sciences executive at Temple University in Philadelphia, PA. He serves as CEO of the Temple University Health System, Senior Executive Vice President for the Health Sciences, and Dean of Temple University School of Medicine. Prior to joining Temple University Dr. Kaiser was the President of UTHealth, the University of Texas Health Science Center at Houston from 2008 until April 1, 2011.
Dr. Kaiser graduated from Tulane University School of Medicine in 1977 and completed his internship and residency in General Surgery as well as a fellowship in Surgical Oncology at the University of California (Los Angeles). He then completed a residency in cardiovascular surgery and thoracic surgery at the University of Toronto. Following that, he served as a thoracic surgeon at Memorial Sloan-Kettering Cancer Center and Assistant Professor of Surgery at Cornell University Medical College (New York) and was then recruited to Washington University School of Medicine (St. Louis) where he was promoted to Associate Professor of Surgery in 1990.
In 1991, Dr. Kaiser was recruited to the University of Pennsylvania (Philadelphia) where he held a succession of positions of increasing responsibility, including Associate Professor of Surgery, Chief of General Thoracic Surgery, Founder and Director of the university’s lung transplantation program, and Director of its Center for Lung Cancers and Related Disorders. In 1995, he was promoted to Professor of Surgery and in 1996 was named the Eldridge Eliason Professor of Surgery, the first individual to hold that chair. In 2001, following a national search, he was named the John Rhea Barton Professor and Chairman of the Department of the Department of Surgery at Penn.
In 2008, Dr. Kaiser was selected as the President of the University of Texas Health Science Center at Houston. There, he was responsible for six schools, more than 10,000 faculty and trainees, and a 900-member physician practice.
Dr. Kaiser’s research and clinical interests include lung cancer, malignant mesothelioma and mediastinal tumors. He is the author or co-author of 14 books and over 250 original papers.
Dr. Kaiser has served in a number of leadership capacities for professional societies and associations, and has been a director of the American Board of Surgery and the American Board of Thoracic Surgery. In 2004, he was elected to the Institute of Medicine of the National Academy of Sciences. His recent honors include citations in Castle Connolly’s “America’s Top Doctors for Cancer” 6th edition, Who’s Who in the World, and Philadelphia Magazine’s “Top Docs,” among others.